Tuesday, June 1, 2021

Summer Tanager

 Saw my first summer tanager! (or recognized for the first time) over at Rockwood park, by the pond

why won't the bluebirds visit our yard? I've tried a mealworm cake...but only once. I saw one down on the other end of navarone. also peppy bluebirds in athens and in the mountains this past weekend



redwinged blackbirds enjoyed the pasture at the farm where we stayed. near abingdon


a ball of yellow flitted and flashed in the pasture, too. i'm pretty sure it wasn't a goldfinch. didn't see any black. and it was quite small. maybe a yellow warbler


two or more of the little birdhouses at the farm were occupied by house wrens. wow they can sing! carolina wrens hang and hop around our house, but i'm not sure we have any regular house wrens.



Thursday, March 11, 2021

cultural autobiography

David Vinson

Rehab 654 - Multicultural Counseling

Cultural Autobiography


Section 1

I don’t think I’ve ever been liked by anyone more than by my Granddaddy David. My two brothers and I were miracles to him. He delighted in us, like a child seeing a fish jump or a first firework. It’s not so much that he thought we were especially good or talented -- though he enjoyed praising and boasting about us; our mere existence simply amazed him, excited him, in a way that I’ve never felt with anyone else. Others have loved me as much and more, I’m grateful and fortunate to say, but he had an exceptional, electric affinity for his grandchildren. And before you object that this is nothing exceptional -- just the mysterious nature of grandparenty love (and you would be right!) -- I must say that I’ve been blessed to know many of my grandparents, and only Granddaddy David seemed to have this constant sense of astonishment, near disbelief, mixed into his care for us.

I say all this because Granddaddy David, David Monroe Blackburn, is my way into this discussion, a place to start and a touchstone along the way. He died only last August; the grief is raw for Grandmother Dot and Mom and his two surviving siblings. I’m still ready to hug him and clap his broadly sloping shoulders. And he represents a lot of my family history.

Blackburn, sounds like a pretty Anglo name, right? Unless I go far afield, most of my family names seem to lead to the British Isles: Vinson (an Anglicized version of a Norman name), Smith, Hallbrooks, Leonard, Bolling, Stewart, and so forth. David Blackburn was born in 1927, the eighth of 12 children, nine of whom survived into adulthood, in Limestone County, Alabama. By the time David was born, the Blackburn’s, like the Vinson’s, had been in Alabama for several generations, by way of Tennessee, part of the southwestern American invasion-migration. 

Reading Edward Baptist’s, The Half Has Never Been Told, was a very intimate experience. Baptist starts the book in Danville, VA -- where I was born and raised -- and tells of the forced march of thousands of enslaved African-Americans along trajectories I’ve driven many times; either through the mountains or dipping south of them into Alabama and other parts of what was then the “southwest.” As Edward Baptist describes it, this slave-driving, stolen-land, cotton-boom financial system first created the American economic behemoth we know. The Blackburn’s and Vinson’s were very much a part of this; both sides seem to have moved into Creek country during this period, with and without enslaved persons.

Of course little David, growing up in a sharecropping family during the Depression, didn’t know America had gotten rich on Black bodies, Native country, and cotton bolls. He just knew he loved horses and mules, wished he had more food and fewer beatings from his dad.

Like so many Southerners, my family’s most cherished stories are often pastoral, invoking “simpler” times on the farm when people were “poor but hard working.” Granddaddy David and his siblings running down the hill to jump into the creek after a hot day in the field. Grandmother Betty always having to pull hookworms out of Dad and Aunt Julie’s feet because they never wore shoes running through the pasture. Grandmother Dot and her twin sister Margie playing paper dolls under the kitchen table. Granddaddy Richard laid up with polio, spending the summer reading and watching rabbits through the window. As Tim Wise explained in “White Like Me,” the images and narrative of poverty from the first half of the 20th century are presented as mostly White, with honor and heroic pathos, a stark contrast to the mostly Black depictions of modern poverty, presented with judgment, pity, or fear.

While the Depression was hard on all my family, I’m sure, really only my Granddaddy David grew up dirt poor. Eventually his eldest brother was able to get a job with the electric company and save up enough money to help his dad finally buy some land. David and all his siblings would grow up, survive wars, get jobs, and enter the middle-class. Hurray! ‘And’ there is White privilege all over David’s story. Not ‘but.’ 

I think one reason many White folks are so resistant to exploring the privilege in their lives and family history is because they think it has to be ‘but.’ They think acknowledging the racist systems and behavior that privileged themselves or ancestors will completely discount their lives. Yes my Paw went from rags to riches, ‘but’ look at all his White privilege. Why can’t we say, ‘and?’ Getting out of the Depression and WW2 was difficult...and, because my family was White, they had a level of opportunity and socioeconomic access that folks of color did not have. My forebears who moved southwest were tough and resourceful, and they were racist abusers of Black and Brown people. If we love our ancestors we need to take them off of these Imperial-Roman pedestals and honestly see their good and evil.

Two of the key supports for Granddaddy David were the church and education. At some point, on both the Blackburn and Vinson sides, my family got dunked, full body, into the Baptist river. I’m not sure if any of my ancestors were born again before the Baptist’s lost their racially integrated and charismatic flavor. In any case, the Southern Baptist Convention and its internal crises have figured prominently in my family. Granddaddy David and my dad both went to Southern Seminary in Louisville and sided with the “moderate” faction in the “conservative take-over” during the late 80’s-early 90’s. My older brother and sister-in-law both went to the moderate Baptist Theological Seminary here in Richmond (where my dad taught for a while). My Vinson grandparents were faithful Sunday School teachers in their conservative SBC church.

Before heading to Southern in Louisville, David struggled through depression and starts and stops and self-doubt to graduate from Howard College in Birmingham; he considered this to be his greatest personal achievement. Education has been both enjoyment and employment for my family. My dad, mom, older brother, step-mom, two granddads and a grandmom have all worked in education at some point. Our family life for the past few generations has orbited the school and church. A “successful” life has been a one of learning and service.

In their marriage David and Dorothy (Dot) assumed fairly stereotypical gender roles. David studied and worked, did most of the outdoor work, while Dorothy worked and worked some more, and did most of the indoor work. The responsibility of caring for my mother, Joan, fell largely on Grandmother Dot, although David was very involved. On my dad’s side my Grandmother Betty achieved undergraduate and graduate degrees, and briefly taught, but after my dad and aunt were born she, too, found herself mostly working at home, caring for the kids, and finding ways to lead and serve at church. She told me once that her most fulfilling work was researching and writing several entries for an encyclopedia of Alabama as well as a history of her church. My mom and dad largely followed suit, with dad working more outside the house and mom inside, although they consciously attempted to share more in the domestic chores.

Sexually our family has presented, up until recently, in a hetero-normative, conservative Christian model. Chastity, monogamy, modesty, man and woman. Over the past 20 years things have really changed. My parents and my aunt and uncle have divorced. My dad is remarried and my aunt has a wonderful same-sex relationship. Granddaddy David, though he never officially endorsed same-sex marriage, seemed more comfortable with the idea in his later years.

I’ve taken more from Granddaddy David, via my mom, than just my name. Depression and headaches. Love of the earth and naps and memorizing Scripture. Like him, I am a cisgendered southern male WASP. None of us in the family who have chronic depression have identified it as a disability, but really it often functions that way - as an impairment to full participation in major life activities. Like him I identify as a Christian and strive to live a simple faith of gratitude and love. I’m not sure if he felt sexually attracted to women exclusively, as I do, but we connected a couple times about our struggle with lust and guilt. We both identify as politically liberal, at least relative to our southern WASPy contexts. I think his sense of Whiteness, developed in the Jim Crow era, had more definition than mine does. In both cases Whiteness is defined primarily by what it isn’t, but in his case this was more often overtly reinforced.

At one point in college I decided that whiteness was bunk and that I would no longer identify myself as such. I was only vaguely aware of the privilege involved in such a thought! Based on Helms’s White identity model, I’d say I’ve spent a lot of time toggling between disintegration and immersion-emersion. Is there any positive future for a classification system designed to oppress? Maybe not, but I’ve accepted whiteness as something to work with, out in front of me as much as possible, so that it’s not pulling all my strings, so to speak.

As for gender identity and sexual orientation, I have put in less time and effort toward developing awareness. Thankfully my parents never overtly pressured me to “be a man,” and they always spoke affirmingly of same-sex relationships. I’ve never been frustrated that I have to live up to some standard of manliness or heterosexuality. I realize that this is a great privilege. Of course, I’ve internalized so much from the examples of male-ness in my family and society. Men stay composed, don’t complain, deal with problems or threats, get angry rather than scared, defer to women in domestic matters, take out the trash and mow the grass.

As a heterosexual man I’ve never faced the slightest bit of discrimination based on my sexuality or sexual orientation. The only time I’ve ever felt the sense of being ‘othered’ in this regard came during a get-to-know you weekend for a study abroad program I did in college. We all stood in the middle of the room and the facilitator called out an identity adjective -- Religious, Optimistic, Biracial, etc. -- and if you identified with the descriptor then you were supposed to walk to the side of the room. Well, one of the words was ‘Straight,’ and I’ve never liked that word, because it seems to imply that if you’re Queer then you’re crooked or broken. Anyway, I didn’t walk to the side of the room, so a few of us were left in the middle as, presumably, Gay or Queer. We got some looks, and one guy seemed to be a little worried about bunking with me after that, but that was the extent of it.


Section 2

While my hometown -- Danville, VA -- was very segregated residentially by race and class, the districts were set up so that the schools were mostly integrated, and the school system as a whole is majority minority. My formative experiences of difference were primarily in school and sports, along racial and class lines. In my childhood world you were either White or Black, poor or middle-class. My immediate neighborhood was basically all white and middle-class to upper-middle-class, nestled between West Main and the train tracks. And, wouldn’t you know, on the other side of the tracks, sat a less affluent, more Black neighborhood. My parents, church, and school teachers all promoted a charitable approach to class difference and a tolerant approach to racial, cultural, and religious differences. There was a lot of good will to go around. But no one really championed a justice approach. I didn’t know until after I left for college that James Lawson and Martin Luther King, Jr. had come to Danville in response to police brutality; this was not taught in school. No one explained why the neighborhoods were segregated. The schools were well integrated, yes, but by the time kids got to high school, the advanced and AP classes were 80% White and middle-class. Racial and class differences seemed to be inevitable and unfortunate, best met with charity and polite tolerance.

My first vivid memories of racial awareness come from school. I remember standing with my kindergarten or first-grade classmate, Thomas, at the water fountain. I mentioned the fact that his name was Thomas, and that Thurman Thomas was the running back for the Buffalo Bills (my buddy’s family loved the Bills). Then, I realized that he was Black, just like Thurman Thomas was Black. I can’t remember if I said that outloud or not.

Another vivid memory is a birthday party from 2nd grade, I think, maybe 1992 or 1993. My classmate and friend, Brandon, had invited me to a pizza parlour-arcade. I was the only White kid among maybe a dozen kids or so. I really enjoyed myself and played with Brandon in the ball pit, trying to do flips off the side. But all during the party, from the moment I walked in, I had a weird feeling that I didn’t know what to do with. This White-Black business was a lot bigger and heavier than I knew. I felt danger in it. My mom later said that Brandon’s parents had been especially appreciative to her for bringing me. Ten years later or so, long after I had lost touch with Brandon, he recognized my mom while working at a restaurant. Looking back, I wonder if, had the roles been reversed, would Brandon and his parents have made as big an impression on me and my family. My hunch is no. Integration has so often been asymmetric, on White terms or in White arenas.

Almost thirty years later, now, this race and culture business is still bigger than I know. As with so many other subjects, the more you know, the more you don’t know. I joined a Black church in college, spent a semester in the Dominican Republic and saw racism against Haitians, lived in Turkey for a school year and met Turks, Kurds, Armenians, and Arabs, worked at a boarding school here in Virginia with kids from all over the world, and lived in an interracial semi-monastic community for six years. I’m so grateful for these awesome intercultural experiences, but I wouldn’t say I understand or could explain them. When I have specific questions about a cultural difference, I guess I follow Granddaddy David’s lead and pick up a book, looking to history and anthropology. But what about the Big picture, the why picture? Are cultural differences more than just the accidents of history and evolution? If anything, to me, they are a call to live life in its fullness; to praise God; to explore and appreciate, engage and argue; to stand in awe of such diverse beauty; to take a stand; to get it wrong; to stay open and grateful.


 

 

 


 

Wednesday, March 3, 2021

The Collected Schizophrenias

Last semester, for my interview and research paper in Medical and Psychosocial Aspects of Disability, I deeply appreciated learning about schizophrenia and the experiences of people diagnosed with schizophrenia. So, when I saw Esmé Weijun Wang’s The Collected Schizophrenias on the suggested reading list for this reaction paper, I immediately ordered it. Wang opens up her life and learning in a series of memoir-essays. With her first two, “Diagnosis” and “Toward a Pathology of the Possessed,” she grounds the reader in the middle of a venn diagram: the overlap of her life’s world and the world of schizophrenia and its related disorders. From there the essays venture out into more and more of her life, with and without direct reference to schizoaffective disorder, yet never beyond its reach. How much of her life is and isn’t her diagnosis? Is there an undiagnosable self or soul underneath the self that has schizoaffective disorder? These are the kinds of recurring questions that, along with the arc of her life and her measured, pearl-strewn writing style, help to weave all the essays together.

Wang touches on topics we have already started covering in this course -- such as media portrayals of people with disabilities, the history of treatment and attitudes towards people with disabilities, and relevant U.S. and California state legislation -- and I’m sure I will continue to hear her voice and stories echoing in the upcoming modules. The subjects I would like to explore in this paper are person-first language and level-of-functioning language.

Person-first language

Without undermining the importance of person-first language, Wang wrestles with its meaning in her life. She is interested in how it allows for a vision or idea of herself without her health condition. “‘Person-first language’ suggests that there is a person in there somewhere without the delusions and the rambing and the catatonia,” she writes in “Yale Will Not Save You” (Wang 2019, p.70). She returns, “But what if there isn’t” (Wang 2019, p.70). Or, in “Perdition Days,” Wang opens the essay with an introductory fragment written during her experience with Cotard’s delusion. She calls out to us, or herself, “I am in here, somewhere: cogito ergo sum” (Wang 2019, p. 145). She goes on to describe her training as an anti-stigma speaker: “We speakers were told that we are not our diseases...Our conditions lie over us like smallpox blankets; we are one thing and the illness is another” (Wang 2019, p.145).

The heart-beat of person-first language is dignity, respect, honoring the full personhood of each individual. Wang never questions that. I expect Wang would wholeheartedly endorse the Disability Language Style Guide’s advice for writing “a person with schizophrenia” rather than “a schizophrenic” (ncjd.org 2018). Like the Style Guide, she directly calls out the “ableist and inaccurate” (Wang 2019, p. 11) vernacular use of ‘schizophrenic’ as “a synonym for something inconsistent or contradictory” (ncjd.org 2018). However, because her experience of schizoaffective disorder is so central to herself, she claims the label “schizophrenic” at some level (Wang 2019, p. 71). On the other hand, she certainly recognizes herself as bigger than or beyond this label; schizoaffective disorder both is and isn’t a part of her. Wang finishes her final essay, “Beyond the Hedge”: “I tell myself that if I must live with a slippery mind, I want to know how to tether it too” (Wang 2019, p. 202). Her “slippery mind” is not her, exactly, it is something she “lives with.”

Part of her connection to the identifier, “schizophrenic,” comes from the usefulness she has found in diagnostic labels. “Some people dislike diagnoses, disagreeably calling them boxes and labels” she writes in her opening essay “Diagnosis,” “but I’ve always found comfort in preexisting conditions; I like to know that I’m not pioneering an inexplicable experience” (Wang 2019, p. 5). She explains further, “A diagnosis is comforting because it provides a framework -- a community, a lineage -- and, if luck is afoot, a treatment or cure” (Wang 2019, p. 5). Throughout the essays, Wang explores her rollercoaster diagnostic history, from a bipolar diagnosis to schizoaffective disorder to PTSD to Lyme disease. With each twist and turn there are new doors, new answers, and new questions.

Wang’s dance with person-first language encourages me to stay open to each person’s experience of referring to theirself vis-a-vis their health condition. As a rehabilitation counselor, I will need to be committed to and always ready with person-first language, while at the same time open to following the lead of each client as they describe their identity within and without their diagnosis.

Level of Functioning

In her essay, “High Functioning,” Wang offers an explanation of her vocational situation that was revelatory for me. She recounts trying to explain to her insurance company, with regard to disability benefits, that she “can’t work at McDonald’s, but [she] can run a business based on freelance work” (Wang 2019, p. 50). A so-called low-skilled job like working fast-food, with its time pressure and inflexibility, would likely trigger or worsen her symptoms. A so-called high-skilled job like free-lance writing and research gives her the flexibility and freedom to work when she can in a way that is healthy for her. Just because Wang can fit with a “high-skill” position, does not mean that she can fit with a “low-skill” position. Our hierarchy of skill is not cumulative like a staircase, rather it is market based and leads us to take for granted all the skills involved in each job. Wang shows me that a person’s “level of functioning” is not the only factor, not even the key factor, that predicts the person’s ability to fit into a certain type or class of jobs.

Wang describes how the level of functioning concept can be problematic in other ways as well. While getting treatment (involuntarily -- a terrible experience for her) in the hospital, she found that a “natural hierarchy” arose among the patients based on “our own sense of functionality and the level of functionality perceived by the doctors, nurses, and social workers who treated us” (Wang 2019, p. 47). She goes on to say, “High-functioning patients had the respect of the nurses, and sometimes even the doctors” (Wang 2019, p. 48). Outside the hospital, as well, she realizes she “cling[s] to the concept of being high-functioning,” because of the implicit social hierarchy. (Wang 2019, p. 49). She is already ‘one-down’ by way of her disability, and down again in the psychiatric hierarchy of diagnoses (schizophrenias being near the bottom, in her experience), not to mention her other intersecting marginalized identities (Wang 2019, p.48). At least, she says honestly and sardonically, she is not on the “low” end of her low-respect, low-success diagnostic group (Wang 2019, p. 49).

Wang describes our society’s definition of high-functioning as being able to “pass in the world as normal,” with normal-ish behavior and social interaction, and above all, with a job, or being able to hold down a job (Wang 2019, p.51). High-functioning seems to be something of a backhanded compliment; “you’re doing well...for a crazy person.” Why do we need to scale or rate people so generally and completely? Does “high/low functioning” correlate with intelligence or another broad group of skills? In a 2015 article in Schizophrenia Research, Eva Alden and colleagues found that, after dividing a group of people with schizophrenia into high and low community functioning sub-groups, the two groups’ IQ’s did not differ (Alden et al., 2015). The main neurocognitive skill that distinguished the two groups was verbal working memory.

Following Wang’s lead, I am inclined to think that the language of high/low functioning does more harm than good when used in a global sense. I am interested to see how this issue may come up in our course. Wang’s stories and analysis opened me up to the problems of labeling people as high or low-functioning and using those labels to inform rehabilitation counseling.

Conclusion

Several other topics in Wang’s essays jump out to me as very relevant to our coursework: her terrible experiences being involuntarily hospitalized -- particularly the staff’s unwillingness to believe her about almost everything; comorbidity in her experience of mental illness; her spiritual journey and search for “explanations” alongside her scientific search for “causes” (Wang 2019, p.24); the way mental illness has shaped her family and relationships; her experience of receiving (and not receiving) mental health support while in college. Wang also illustrates but doesn’t dwell on the specifics of her psychotic episodes. Life goes on, within and without reality. I expect that Wang’s The Collected Schizophrenias will continue to give me context for upcoming information and topics in this class.



References


Alden, Eva C, Cobia, Derin J, Reilly, James L, & Smith, Matthew J. (2015). Cluster analysis

differentiates high and low community functioning in schizophrenia: Subgroups differ

on working memory but not other neurocognitive domains. Schizophrenia Research, 168(1), 273–278. https://doi.org/10.1016/j.schres.2015.07.011


National Center on Disability and Journalism (2018). Disability Style Guide. NCDJ.org.

https://ncdj.org/style-guide/#S


Wang, Esmé Weijun (2019). The Collected Schizophrenias. Graywolf Press.













Intro: why picked the book, brief description

  • Diagnosis

  • high/low functioning

  • Involuntary hospitalization

  • Comorbidity and intersectionality


how the content relates to this course such as, historical, foundational, vocational, legal and ethical aspects of disability culture and rehabilitation counseling, environmental and attitudinal barriers for people with disabilities, etc.


Historical - diagnosis, DSM

  • Ongoing research and development

  • Stigma, social barriers

  • Comorbidity


Key topics/themes for paper

  • Diagnosis, neutrality, identity, person first language

  • Level of function, vocational

  • Involuntary treatment

  • Comorbidity, intersectionality


The Collected Schizophrenias


  1. Diagnosis

    1. Archetypal, “gone,” gibel - doom, catastrophe

      1. “Painful for others”, resists sense, stats

      2. Journey to diagnosis

        1. Finds comfort in diagnosis - 5

          1. Literature, memoir

          2. DSM

        2. Kraepelin and Bleuler

        3. Use of schizophrenia in vernacular (split mind, stigma)

        4. NIMH and DSM issues

        5. Running a SCID

        6. Diathesis-stress

        7. Risk factors for her and mother

        8. Fire type

        9. Lyme disease

        10. Explanations rather than causes - 24

        11. Evolutionary persistence

        12. Art

  2. Toward a Pathology of the Possessed

    1. Murder of Malcoum Tate

      1. Family felt out of hope, feared for life

      2. Solomon - Far from the tree - like Alzheimer’s - deletion rather than replacement

        1. Frequent story or way of looking at schz

      3. NAMI - support for families, AB 1421, involuntary treatment if poses a danger, 5150’s

      4. Exorcist

      5. Unless you have money, no options for long term care

      6. SOLVE antistigma

      7. Level of insight, taken over

      8. Terror of involuntary treatment, don’t know how long, etc, cannot be trusted

  3. High Functioning

    1. Antistigma speaking

    2. Natural hierarchy in hospital, sense of functionality and normalness

      1. Who can and cannot be gifted

      2. Only see schzi or psychosis mentioned in context of violence

    3. Type of job - low level, upper level, etc - has more to do with type of stress and control, schedule, social scene

      1. High-functioning w unpredictable and low functioning illness 50

      2. Pass

        1. Valuing productivity

      3. RAISE, OnTrackNY

      4. “A uniform for a battle with multiple fronts” 53

      5. Weaponized glamoour

      6. Necessary concessions to my craziness 56

    4. Radical and visceral imbalance of power 57, inpatient, illness in human form

  4. Yale will not save you

    1. Parents’ story, impt of education, acceptance to Yale, good and bad of home life

    2. “Kill ourselves together”

    3. Cotton Mather, yale and witch hunts

    4. Summer before left for new haven, diag with bipolar (manic episode)

    5. Psychiatrist - focused on mother

    6. Constant agony

    7. Feeling special

    8. As-Am performance art group - watch out for mental hygiene dept; involuntary hospitalization, “neer tell them you’re thinking about killing yourself, okay?”

    9. The shakespeare lady, Chris’ reassurance

    10. Experiences of students expelled, mistreated, not allowed to return

    11. I’m still trying to figure out what “okay” is, particularly whether there exists a normal version of myself beneath the disorder 70

      1. Person first language

    12. Two point restraint

    13. How Colleges Flunk Mental Health

  5. The Choice of Children

    1. Afraid of awakening desire for children

      1. Camp Wish

        1. Bipolar mysterious in children, comorbidity, hard to diagnose kids

      2. Potential complications to have kids, b/c of meds, care taking, passing on

        1. But could be a great mother...

      3. Stuart, bullying, finding some fun

        1. We could have a kid like that. (taken in neg and pos)

      4. Is my ovary ok?

  6. On The Ward

    1. Involuntary commitment

      1. Terrible food, supervision, level 1 privileges

        1. Asylum, sanitarium, Nellie Bly (ten days in a mad-house)

        2. “Lack of insight”

        3. 98 “you will not be believed about anything”

          1. Things will be believed about you that are not at all true

        4. “Unsafe” double as suicidal

        5. 101 proclamations of insanity are the exception to the rule

        6. David Rosenhan 1973 - like Bly

        7. Bly - easy to get in, hard to get out

        8. Absolute terror of not knowing when or if going to let out

        9. Average stay 10 days, supposed to stabilize and set up for recovery

        10. Maisel - Bedlam 1946

        11. Decision to do away with mental hospitals

        12. 108 - “never felt useful to me”

        13. 5150’d,

        14. “I don’t know how anyone gets better in that place”

        15. 1.3 mill w MI incarcerated

        16. 110 - “not one of my three hosp helped me”...

  7. The Slender Man, the Nothing, and Me

    1. Two 12 year-old-girls stabbed, caught up in imag/delusion w/ slender man idea, stabs friend and almost kills, prosecuted as adults

      1. Diagnosed afterwards

    2. Imag world with never ending story, very serious, the Nothing, this is real

    3. Internet

    4. Anchor to reality

    5. Kids genuinely fear boogeyman

  8. Reality, On-Screen

    1. Going to see Lucy, hurtling into the reality of the film 124

      1. With friends who know her well, attentive to her

      2. Didn’t always recognize the feeling of becoming psychotic, no clear checklist, can seldom describe until after the fact, agitation...something wrong...then completely wrong

      3. Shows that help - bakeoff

      4. Movies - 128 - enforce stories they tell, capacity for empathy

      5. Beautiful mind - not great depiction of schzi but better for delusion, boundaries

  9. John Doe, Psychosis

    1. Hallucinations - seeing John

      1. HS boyfriend who raped and abused her

        1. Trauma and schizoaffective disorder

        2. Developed PTSD 2014

          1. Lit tastes switched to violence and gore

          2. Links to psychosis

    2. Thought disorder

      1. Emdr attempt

    3. Delusions

      1. Reality checks

      2. Was it him?

    4. Catatonia

      1. Inept and poorly received testimony of what happened, some people not believe, 141, keep it to myself now

    5. Impairments in Social Cognition

      1. Moods, sorry not sorry

      2. Hoping forgiveness bring peace (forgiveness and healing not a onetime deal 143)

      3. 143 Great British Bake Off

      4. Delusion that “free of him” and safe

  10. Perdition Days

    1. Cotard’s delusion

      1. We are not our diseases?

      2. “There was no solution” 147 saw psychosis oncoming

      3. Related to Capgras delusion (unable to feel emotion about familiar faces)

      4. 147 - flip attitude

      5. 148 - “my solid belief”

      6. Delusions harder to medicate away than hallucinations

      7. Questions about percentages 150

      8. From optimistic afterlife to perdition, psychic agony

      9. Decision to enter world of Gilead, 152, hell/perdition

      10. Lost lots of weight, no rhythm, psychic pain

      11. ECT consult

      12. Notion of perdition never left me, but degree to which i despaired about it did 157

  11. L’Appel du Vide

    1. Francesca Woodman

    2. Suicide demands a narrative but rarely gives on 162

    3. Recognition

    4. Self-portraits during periods of psychosis

    5. 165 - “with chronic illness, life persists astride illness until unless the illness spikes to acuity

    6. Advocating for net under golden gate bridge

    7. Disability benefits ending

    8. 169 “oldself appalled to see limitations of new life”

  12. Chimayo

    1. Exhaustion, weakness of muscles,

    2. Autoimmune disorders source of much MI?

    3. Hope in neurologist but no luck

    4. Lyme-community LLMD (lyme-literate medical doctor)

    5. 173 - primary identifiers...this changes story/understanding of self

    6. Chronic Lyme disease a kind of belief system (International Lyme and Associated Diseases Society)

    7. Yet to find someone whose insurance covers treatment

    8. Morgellons - creepy crawly disease

    9. Ready to try to believe him

      1. “Linked by desperation based in suffering”

    10. Considered becoming Catholic

    11. El pocito

    12. Autoimmune and risk for schiz

    13. 182 - hope vs faith

    14. “Always looking for a way out” 183

    15. Disappointment with referral

  13. Beyond the Hedge

    1. Experience of seeing through eyelids

      1. Oracle and tarot cards

    2. Sch doesn’t require “distress” for diagnosis

    3. Spiritual gifts?

    4. “Belief does not simplify life” 192

    5. Liminal and medial, borderland

    6. 194 looking for a container

    7. Suffering will be of use (meaning - Frankl)

    8. Rational, vs irrational, vs nonrational

    9. Kidnap the senses (hallucinations) 197

    10. Tie around ankle, to keep from “slipping”

    11. Caution against dithering in other realms

    12. 201 - something to do when it seems nothing else to be done

    13. Last big delusion episode four years prior

      1. “Tread carefully” to stay where

      2. Want to know how to tether slippery mind